Sarcoma Stories
by Sarcoma Foundation of America
Latest episode
Ken Cleary
Ken Cleary
About this podcast
We're excited to announce, "Sarcoma Stories" a new podcast from SFA.
Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.
Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes.
We will also have a post episode discussion on our new facebook group. Join Now: https://www.facebook.com/groups/512452631597704
Episodes
The newest 20 of 30 episodes
- Ken Cleary · 1 h 6 min · Season 2 Episode 16On this episode we are joined by Ken Cleary, an angiosarcoma survivor and amputee. Ken describes the journey to diagnosis, how he made the decision to go forward with an…
- Brendan Locke · 1 h 3 min · Season 2 Episode 15On this episode, in honor of Sarcoma Awareness Month, Brendan Locke shares the sarcoma journey of his wife, Melissa Locke. Brendan and Melissa have been vital in the advocacy…
- Rohini Deivasigamani · 55 min · Season 2 Episode 14On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on…
- Sarah Downey · 1 h 9 min · Season 2 Episode 13This week, we speak with Sarah Downey, an angiosarcoma patient, advocate, and writer. Sarah takes us through her diagnosis journey, which included misdiagnosis and dismissal of…
- Gianna Cericola · 44 min · Season 2 Episode 12On this episode, we speak with Gianna Cericola, a survivor of Desmoplastic Small Round Cell Tumor (DSRCT for short). After two long years, she rang the bell signifying the end of…
- Tasha Nathan · 57 min · Season 2 Episode 11On today’s episode we’re sharing the sarcoma story of one of our Sarcoma Stories hosts, Tasha. Tasha has been hosting Sarcoma Stories since its inception in November 2024 and…
- Pan Pantziarka · 56 min · Season 2 Episode 10On this episode, we speak with SFA Director of Europe’s Strategy and Engagement, Pan Pantziarka. While he is an incredible staff member at SFA who supports SFA’s global work, he…
- Kate & Kristen · 1 h 3 min · Season 2 Episode 9In this episode, we sit down with Kate DeForge, who was diagnosed with undifferentiated pleomorphic sarcoma as a young adult. Kate opens up about what it’s been like navigating…
- Simone Cheatham · 58 min · Season 2 Episode 8On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her late father, Hardin—lovingly…
- Julie Harp · 1 h 13 min · Season 2 Episode 7In this episode, we speak with Julie Harp, who shares her experience as a care partner to her son, Don, during his sarcoma journey and as he approached the end of life. Julie…
- Crystal Mollica · 57 min · Season 2 Episode 6We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal…
- Carol Haslam · 1 h 10 min · Season 2 Episode 5In this episode, we sit down with Carol Haslam of Sarcoma Cancer Ireland. Carol not only is a board member and driving force behind the organization’s operations, but she is also…
- Joel & Amanda Stetler · 1 h 7 min · Season 2 Episode 4On today’s episode, we’re joined by Joel and Amanda Stetler — a dynamic couple from California. Joel has been knowingly living with a low-grade fibromyxoid sarcoma, and in the…
- Chris Barry · 51 min · Season 2 Episode 3On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with…
- Andrey Ivchenko · 55 min · Season 2 Episode 2On this episode of Sarcoma Stories, we’re joined by actor Andrey Ivchenko as he shares his powerful journey through a chondrosarcoma diagnosis. While you may not be familiar with…
- SFA's Founders · 1 h 4 min · Season 2 Episode 1We’re back from our summer hiatus with a very special episode to kick off Season 2! August 2025 marked the beginning of SFA’s 25th anniversary year, and we couldn’t think of a…
- Breon and Leia Glass · 55 min · Season 1 Episode 14On this episode, we speak with Breon and Leia Glass. Breon, a 29-year-old synovial sarcoma survivor and law enforcement officer, found his tumor while on a foot pursuit. He takes…
- Emily Oberst · 47 min · Season 1 Episode 13On this episode, we’re joined by Emily Oberst, an Ewing sarcoma survivor. Emily shares her experience navigating childhood cancer — from the decision making around surgery as an…
- Dan Rubin · 1 h 22 min · Season 1 Episode 12On this episode, we sit down with Dan Rubin, who was diagnosed with Ewings sarcoma in 2017 and has since navigated many, many different types of therapies to manage his…
- Brian Fugere · 1 h 6 min · Season 1 Episode 11On this episode, we speak with Brian Fugere, who is a synovial sarcoma survivor of 20 years. Brian shares his perspective on what the sarcoma landscape looked like 20 years ago…
