The HDSA Podcast
by Huntington's Disease Society of America
Latest episode
S4:E10 Let’s Talk About Life Insurance Planning and HD
S4:E10 Let’s Talk About Life Insurance Planning and HD
About this podcast
The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.
Episodes
- S4:E10 Let’s Talk About Life Insurance Planning and HD · 40 min · Season 4 Episode 10Send us Fan Mail Planning for the future can bring up important questions for individuals and families impacted by Huntington’s disease. In this episode, Tam and Allison speak…
- Let’s Talk About the BLA Update: What It Means for the HD Community · 39 min · Season 4 Episode 9Send us Fan Mail Join Tam, Allison, and Maryann for a conversation about the Biologics License Application (BLA) update and what it means for the Huntington’s disease community…
- S4:E8 Let's Talk About Medical Advocacy · 48 min · Season 4 Episode 8Send us Fan Mail In this episode of the HDSA Podcast, we sit down with Dr. Kae Bendixen to discuss the importance of medical advocacy and how individuals and families impacted by…
- S4:E7 Let's Talk about IVF and PGDIVF · 43 min · Season 4 Episode 7Send us Fan Mail In this episode of the HDSA Podcast, hosts Tam, MaryAnn, and Allison are joined by special guest Erin Paterson for an open and informative conversation about in…
- S4:E6 Let's Talk About the Grey Area : Part 2 · 18 min · Season 4 Episode 6Send us Fan Mail In Part 2 of Grey Area, the HDSA Podcast team continues the conversation with researchers Chris Kay, PhD, and Jessica Dawson, PhD, diving even deeper into the…
- S4:E5 Let's Talk About the Grey Area: Part 1 · 32 min · Season 4 Episode 5Send us Fan Mail What happens when a Huntington’s disease genetic test result doesn’t look the way you expect? In Part 1 of Grey Area, the HDSA Podcast team is joined by…
- S4:E4 - Tell Allison What She Missed at the HDSA Annual Convention · 47 min · Season 4 Episode 4Send us Fan Mail Allison couldn’t make it to Convention, so Tam and Maryann are filling her in on everything she missed! From powerful sessions and community moments to key…
- S4:E3 - Let's Talk About HD Awareness Month Part 2 · 35 min · Season 4 Episode 3Send us Fan Mail In this episode of Let’s Talk About HD, hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful…
- S4:E2 - Let's Talk About HD Awareness Month with Tam, Allison & MaryAnn · 28 min · Season 4 Episode 2Send us Fan Mail Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn In this episode of Let’s Talk About HD, we recognize Huntington’s Disease Awareness Month with a…
- S4:E1 - Let's Talk About HD with Tam, Allison & MaryAnn · 28 min · Season 4 Episode 1Send us Fan Mail Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of…
- S3:E1- Let's Talk About Volunteering with HDSA · 22 min · Season 3 Episode 1Send us Fan Mail In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in…
- S2:E5 Let's Talk about the HD ELPFDD Meeting · 24 min · Season 2 Episode 5Send us Fan Mail In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th…
- S2:E4 - Let's Talk About POWERHD · 23 min · Season 2 Episode 4Send us Fan Mail In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and…
- S2E3: Phyllis Foxworth & Dr. Victor Sung · 38 min · Season 2 Episode 3Send us Fan Mail In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research. Phyllis…
- S2E2: Leora Fox, PhD & Kelly Andrew Part 2 · 39 min · Season 2 Episode 2Send us Fan Mail In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in…
- S2E1: Leora Fox, PhD & Kelly Andrew · 42 min · Season 2 Episode 1Send us Fan Mail In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew. Leora is the Assistant Director of Research and Patient…
- Episode #3: Maryann Emerick, Dr. Jim Gusella and Dr. Marcy MacDonald · 49 min · Season 1 Episode 3Send us Fan Mail In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick; Dr. Jim Gusella and Dr. Marcy MacDonald. Maryann is HDSA's Manager, Youth &…
- Episode #2: Chris Cosentino & Robi Blumenstein · 54 min · Season 1 Episode 2Send us Fan Mail In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein. Chris Cosentino is HDSA's Director of Marketing & Communications and has been with…
- Episode #1: Arik Johnson & Teresa Srajer · 38 min · Season 1 Episode 1Send us Fan Mail In this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th…
