Amplifying the Patient Journey
av Practical Neurology
Nyeste episode
Bill Nye on Ataxia, Family Risk, and the Search for Answers
Bill Nye on Ataxia, Family Risk, and the Search for Answers
Om denne podkasten
The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.
Episoder
De 20 nyeste av 22 episoder
- Bill Nye on Ataxia, Family Risk, and the Search for Answers · 22 minIn this episode, Bill Nye—science communicator, television presenter, and ataxia advocate—shares his experience growing up in a family affected by ataxia, discusses the…
- The Power of Movement for Parkinson Disease · 22 minDr. Nina Mosier, MD, an Internal Medicine physician specializing in Geriatric Medicine, shares the journey of her father after his diagnosis with Parkinson Disease. She also…
- Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More · 36 minAndrew Cherico, a student at the University of Central Florida, Orlando, FL, discusses his experience living with spinal muscular atrophy (SMA), the impacts of available…
- Emma’s Journey: A Mother’s Hope in the Face of Dravet Syndrome · 19 minIn this episode, Nicole Watson shares her daughter Emma’s powerful journey living with Dravet syndrome, a rare and severe form of epilepsy. From the early days of uncertainty and…
- Learning, Laughing, and Living with Multiple Sclerosis · 28 minArdra Shephard, a musician, author, fashion-show TV host, podcaster, and MS advocate, discusses her experiences living with MS, including how she uses her story to educate and…
- Parkinson Disease Therapy: Lifestyle Interventions to Optimize Care · 25 minLisa Volenec, a patient advocate and General Manager of KMTV, Omaha, NE, shares how incorporating lifestyle modifications—such as diet, exercise, and community engagement—has…
- Redefining the Doctor-Patient Partnership: What a Physician-Patient Can Teach Us About Parkinson Disease Care · 13 minHow can neurologists partner with their patients living with Parkinson disease? Kathleen Blake, MD, MPH, Santa Fe, NM, Vice Chair of the Parkinson's Foundation People with…
- Mastering Migraine · 25 minMelody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is…
- The Importance of Early Diagnosis and Treatment of Alzheimer Disease · 21 minLinda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance…
- Rehabilitation after Traumatic Brain Injury (TBI) · 24 minAfter an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue…
- Redefining Life with Friedreich Ataxia · 12 minWe speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the…
- Young-Onset ALS: Diagnosis and Research · 20 minIn this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of…
- Rett Syndrome: Magnolia and Her Family's Experience. · 23 minAJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and…
- PD GENEration and Barriers to Parkinson Diagnosis - Part 2 · 18 minRichard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD…
- PD GENEration and Barriers to Parkinson Diagnosis - Part 1 · 19 minChantale Branson, MD, Associate Professor of Neurology at Morehouse School of Medicine, Atlanta, GA, is a researcher working on the pivotal PD GENEration study, which aims to…
- The Influence of Family Health History on the Diagnosis of hATTR Amyloidosis · 20 minBernice Bennett, genealogist, health education specialist, and co-founder and faculty member of the Midwest African American Genealogy Institute, discusses the Family Health…
- Beyond Brain Injury · 27 minElisabeth Beraquit, a Philadelphian, CPA, and former bakery owner, recounts her painstaking journey of recovery from a traumatic brain injury due to a 30 foot fall.
- Surviving Stroke: 2 Surgeons Experience with Recovery · 31 minSiva Murugappan, MD, General Surgeon, Chatham-Kent Health Alliance, Ontario, Canada, shares his own experiences as a patient recovering from an ischemic stroke. He is joined by…
- Ping Pong and Parkinson Disease · 31 minPingPongParkinson founder, Nenad Bach, discusses why he started PingPong Parkinson. He is joined by Gabe Elkinson and Ryan Dong, two high school students who started a…
- Epilepsy Caregiving · 29 minCaregivers play an important part in the patient journey, especially with conditions such as epilepsy. Actor and podcast host of "Talk About It!" Greg Grunberg discusses how…
