CAH PULSE
by CARES Foundation
Latest episode
Season 3 | Episode 6: Allyson Part 2 - The Good Kind of Stubborn: An…
Season 3 | Episode 6: Allyson Part 2 - The Good Kind of Stubborn: An…
About this podcast
CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community.
*This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*
Episodes
The newest 20 of 24 episodes
- Season 3 | Episode 6: Allyson Part 2 - The Good Kind of Stubborn: An Athlete's CAH Story · 23 min · Season 3 Episode 6Can you compete in an Ironman while living with CAH? Allyson says, absolutely! In this episode of CAH Pulse, Allyson returns to share her lifelong journey as an athlete with CAH…
- Season 3 | Episode 5: Allyson’s Journey: “Different is What Makes You Good” · 29 min · Season 3 Episode 5In this encouraging episode of CAH Pulse, Dina and Stephanie talk to Allyson who is gracefully navigating life with CAH. Allyson eagerly shares her journey from being diagnosed…
- Season 3 | Episode 4: From Patient to Pioneer: Julia Anthony Always Goes Big · 34 min · Season 3 Episode 4Born with salt-wasting CAH before newborn screening existed, Julia Anthony spent much of her childhood, high school and even college days in hospitals dealing with adrenal…
- Season 3 | Episode 3: A Mother’s Gut is Never Wrong - Becky’s Unexpected Journey · 35 min · Season 3 Episode 3In this powerful episode of CAH Pulse, Becky, shares her deeply personal journey navigating her newborn daughter’s unexpected CAH diagnosis. What was planned to be a joyful home…
- Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar · 30 min · Episode 20When Lupe’s daughter Christina was born, everything changed in an instant. After a difficult pregnancy and an unexpected diagnosis of CAH, Lupe found herself navigatinga…
- Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster · 35 min · Episode 19In this uplifting episode of CAH Pulse, Stephanie and Dina talk with the unflappable 17-year-old Karter, who shares his experiences as a high school student-athlete living with…
- Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing · 30 min · Episode 18In this final episode of Season 2 - Stephanie and Dina are joined by leading CAH experts, Drs. Witchel and Auchus. This episode was made to provide a deeper understanding of the…
- Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery · 38 min · Episode 17In this episode of CAH Pulse, host Stephanie Erb and CARES Foundation director Dina Matos sit down with distinguished scholar Dr. Dimitri Grigoriadis of Neurocrine Biosciences…
- Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere · 38 min · Episode 16In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from…
- Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH · 42 min · Episode 15In this touching episode, Stephanie and Dina speak to Kristina, a young mom to 2 little girls who's younger daughter lives with salt wasting CAH. Kristina recalls her journey…
- Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH · 38 min · Episode 14In this gripping episode Dina and Stephanie tackle a most important and controversial topic, putting an end to the dangerous stigma which far too many children (both boys and…
- Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal · 35 min · Episode 13In the mid 1960's, Tim was diagnosed with CAH just weeks after he was born. His CAH simply didn’t set off many alarms with his medical team, nor his parents. As a result, he…
- Season 2 | Episode 6: Dr Su: Words of Wisdom: Clearing up the Confusion of Stress Dosing · 33 min · Episode 12In this masterfully eye-opening episode, Stephanie and Dina pick the brilliant mind of CARES Foundation's Medical Director, and Professor & Pediatric Endocrinologist at the NY…
- Season 2 | Episode 5: Raelie: CAH Does Not Define THIS Ten Year Old! · 36 min · Episode 11Is ten-year-old Raelie unphased by her CAH? Find out in this important episode of CAH Pulse where Stephanie and Dina speak with Amanda and her strong, brave and laid back 5th…
- Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver! · 32 min · Episode 10In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is…
- Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker · 38 min · Episode 9In this memorable episode, Ryan, who has seemed to manage his classic salt wasting CAH head-on with an organized, matter of fact approach, has been faced with new challenges to…
- Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing" · 38 min · Episode 8In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the…
- Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back" · 38 min · Episode 7Marc wasn't formally diagnosed with salt wasting CAH until he was the age of 3. Up to that point, Marc's mother had spent his infant and pre-school years simply trying to prevent…
- Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl" · 39 min · Episode 6Stephanie and Dina learn the startling details of David and Brianne’s CAH journey with their little girl who was born into an uncertain world. Not only was her birthday during…
- Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14" · 37 min · Episode 5"We can assume kids are gonna have questions; so create a relationship outside of CAH and the rest will follow". One of the poignant thoughts belonging to Lindsey, a warm…
