Narcolepsy Navigators Podcast
de Kerly Bwoga
S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood
Sobre este podcast
Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.
Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.
Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."
Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.
Episódios
Os 20 episódios mais recentes de 68
- S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood · 52 min · Temporada 5 Episódio 6Leave a review! Milah was six when narcolepsy began. She remembers a very energetic, curious child, and then a child who slept so much she spent school days in the medical room…
- S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated · 54 min · Temporada 5 Episódio 5Leave a review! Kylie Dennis O'Sullivan was diagnosed with narcolepsy type 1 at 12 years old — after years of being told by doctors that she was "just fat and lazy." In this…
- S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout · 57 min · Temporada 5 Episódio 4Leave a review! Liz is a speech and language therapist. Christine is a former chartered accountant. Both were diagnosed with narcolepsy type 1 — and both have had to fight, again…
- S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends · 1 h 17 min · Temporada 5 Episódio 3Leave a review! Mel has narcolepsy without cataplexy.Jeanna has Tourette syndrome. They met in a Walmart parking lot, went viral for a motorcycle ride the internet still argues…
- S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy · 42 min · Temporada 5 Episódio 2Leave a review! At just 16, Chloe has already lived through what most people spend decades trying to understand about themselves. Diagnosed with narcolepsy type 1 in seventh…
- Who Decides What a Medical Breakthrough Is Actually Worth? · 23 minLeave a review! What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly…
- Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit · 51 min · Temporada 1 Episódio 6Leave a review! It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make…
- YouTube Hates Us and That's Exactly the Point · 18 minLeave a review! What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special…
- S5E1: The Night I Carried My Sleeping Son to the ER · 1 h 17 min · Temporada 5 Episódio 1Leave a review! What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for…
- S4E12: The Teacher Who Was Sent to Rehab for Being Sick · 52 min · Temporada 4 Episódio 12Leave a review! Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one…
- S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer · 56 min · Temporada 1 Episódio 5Leave a review! What does it look like to build an extraordinary life with narcolepsy — without medication? Welcome to the Narcolepsy Navigators Advocacy Series, where lived…
- S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser · 52 min · Temporada 4 Episódio 4Leave a review! Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep…
- S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy · 1 h 2 min · Temporada 4 Episódio 11Leave a review! ⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first. 🎙️…
- Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story · 54 min · Temporada 1 Episódio 4Leave a review! Episode Summary: What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself…
- S4E10:Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About · 50 min · Temporada 4 Episódio 10Leave a review! In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing…
- S4E9:Full Speed Ahead: How Narcolepsy Can't Stop This Race Car Driver · 33 min · Temporada 4 Episódio 9Leave a review! Meet Vincent Arthur - a 21-year-old race car driver from Charlotte, North Carolina, who's proving that narcolepsy type 2 doesn't have to slow you down. In this…
- S4E8:Motherhood, Pregnancy & Narcolepsy with Ashley Blankenship · 41 min · Temporada 4 Episódio 8Leave a review! Can you have a successful pregnancy and thrive as a parent while living with Narcolepsy? This week on Narcolepsy Navigators, Kerly and Liz sit down with Ashley…
- S4E7: Redefining Strength: Javiera's story of Resilience with IH · 1 h 16 min · Temporada 4 Episódio 7Leave a review! In this powerful and emotional episode of Narcolepsy Navigators, we travel to South America for the very first time to share the story of Javiera Santamaría, a…
- S4E6:Building a Life That Works With Your Energy: Cloud’s Journey · 49 min · Temporada 4 Episódio 6Leave a review! In this episode of Narcolepsy Navigators, we sit down with Cloud, a narcolepsy advocate from San Diego living with Narcolepsy Type 1 with cataplexy. After years…
- Medical Series S1E4:Hot Flashes, Anxiety, Insomnia-The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser · 52 min · Temporada 1 Episódio 4Leave a review! Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser Narcolepsy Navigators launches its Medical Series on narcolepsy and…







