Beyond the Count
by ITP Australia and New Zealand
Latest episode
FATIGUE & ITP - Part 1 - What Does Fatigue in ITP Look Like?
FATIGUE & ITP - Part 1 - What Does Fatigue in ITP Look Like?
About this podcast
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
Episodes
The newest 20 of 33 episodes
- FATIGUE & ITP - Part 1 - What Does Fatigue in ITP Look Like? · 37 min · Season 2 Episode 33Fatigue is one of the most common symptoms experienced by people living with ITP. Yet for many patients, it's also one of the most difficult to explain. It's more than feeling…
- ITP: More Than a Diagnosis · 37 min · Season 2 Episode 32ITP: More Than a Diagnosis The Relationships, Support and Community That Carry Us Through Being diagnosed with ITP can feel incredibly isolating. Suddenly you're navigating…
- So, You've Been Diagnosed with ITP. Now What? · 15 min · Season 2 Episode 31So, You've Been Diagnosed with ITP. Now What? Being diagnosed with ITP can feel like your world has been turned upside down. One minute, life feels completely normal. The next…
- Decoding Risk Series - Part 4: Becoming a Partner in Your Care · 29 min · Season 2 Episode 30Understanding risk is important. But knowing how to ask questions, communicate what matters to you, and make confident decisions is where it all comes together. In the final…
- Stronger Together: How Global Collaboration is Changing the Future of ITP · 25 min · Season 2 Episode 29What happens when patient advocates from around the world come together with one shared goal: improving the lives of people living with ITP? In this special episode of Beyond the…
- Decoding Risk Series: Part 3 - The Words that Trick Our Brains · 19 min · Season 2 Episode 28Decoding Risk Series — Part 3: The Words That Trick Our Brains When you read that a side effect is "common" or "rare", what do those words actually mean? For many patients, these…
- Clinical Trials Explained: What they are, How they work and How to know if they're right for you · 43 min · Season 2 Episode 27Clinical trials can feel complicated, overwhelming, and sometimes even a little intimidating. Yet every treatment available today has reached patients because people chose to…
- Decoding Risk Series: Part 2 - Why Medication Leaflets Look So Terrifying · 19 min · Season 1 Episode 26Decoding Risk Series — Part 2: Why Medication Leaflets Look So Terrifying You know the feeling. You open a medication leaflet, and suddenly you’re staring at pages of tiny print…
- Watch and Wait: Why doing nothing is sometimes the best medicine. · 26 min · Season 1 Episode 25For many parents, hearing that their child has ITP is overwhelming. But what can feel even more confronting is being told that the best approach might be to “watch and wait.” In…
- Decoding Risk Series: Part 1 - Why Side Effects Happen · 26 min · Season 1 Episode 24Why Side Effects Happen | Decoding Risk (Part 1) Starting a new treatment for ITP can feel overwhelming, especially when side effects enter the conversation. For many patients…
- Blood Clots in ITP: What Patients Need to Know · 25 min · Season 1 Episode 23Blood Clots in ITP: What Patients Need to Know | Beyond the Count Podcast Most people living with Immune Thrombocytopenia (ITP) are taught to focus on bleeding risk. But what…
- "But You Don't Look Sick": The Invisible Reality of Living with ITP · 30 min · Season 1 Episode 22ITP is often called an “invisible illness”, and for many patients, the hardest battles are the ones no one else can see. In this episode of Beyond the Count, Danielle speaks with…
- The 2026 ITP Patient Conference Highlights · 41 min · Season 1 Episode 21Highlights, Insights and the Voices Shaping Our Future The 2026 ITP Australia & New Zealand Patient Conference brought together clinicians, researchers, nurses, and patients for…
- The Bruise That Stopped Me · 14 min · Season 1 Episode 20A moment of fear, a rush of memories, and the truth about living with ITP — even on the “good” days. A single unexplained bruise can stop you in your tracks — no matter how long…
- What It’s Like to Be Diagnosed with ITP as a Kid with Connor & Kim · 35 min · Season 1 Episode 19Connor and his mum, Kim, share their story of bruises, hospital visits and finding confidence again after an ITP diagnosis. Being diagnosed with Immune Thrombocytopenia (ITP) as…
- Living with ITP: How our haematology nurses play a vital role in bridging the gap in care. · 34 min · Season 1 Episode 18Haematology nurses are often the steady voice, the calm presence and the guiding hand that patients rely on throughout their ITP journey. In this episode of Beyond the Count…
- ASH 2025 Highlights: Progress, Possibilities & What’s Ahead for ITP · 21 min · Season 1 Episode 17A global overview of new treatments, real-world data and patient-centred research. ASH 2025 delivered some of the most exciting developments the ITP community has seen in years…
- ITP Explained: The Basics Every Patient Should Know · 38 min · Season 1 Episode 16Clear answers on diagnosis, symptoms, and living with Immune Thrombocytopenia (ITP) Understanding Immune Thrombocytopenia (ITP) can feel overwhelming, especially in the early…
- ITP in Kids Series: When to Treat and What to Expect · 29 min · Season 1 Episode 15Deciding when — or whether — to treat a child with ITP can feel overwhelming for families. In this episode of Beyond the Count, Associate Professor Dr Tina Carter, Paediatric…
- Making Complex Simple: How Medical Advisors Support the ITP Community · 39 min · Season 1 Episode 14Medical advisors play a crucial role in rare disease care, ensuring patients are not only treated but truly understood. In this episode of Beyond the Count, host Danielle Boyle…
