Help 4 HD Live!
by Help 4 HD Live!
Latest episode
HDYO Congress Scholarships with Jenna H.
HDYO Congress Scholarships with Jenna H.
About this podcast
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
Episodes
The newest 50 of 701 episodes
- HDYO Congress Scholarships with Jenna H. · 37 minHDYO International Young Adults Congress is an in-person event designed by young people impacted by Huntington’s Disease (HD) for young people impacted by HD. This event will…
- An HD Thanksgiving with DJ and Jessica · 22 minOn this special episode of Help 4 HD Live, host Katie Jackson is joined by DJ and Jessica to share a heartwarming initiative: an open-door Thanksgiving for anyone in the…
- Living with HD, Part 2, with Susanna of Genetic Frontiers · 45 min“If we want to live and love with our whole hearts, and if we want to engage with the world from a place of worthiness, we have to talk about the things that get in the way…
- Living with HD Part 1 with Genetic Frontiers · 34 minDescription courtesy of Genetic Frontiers: When you walk through life for decades facing down an incurable disease, knowing how you might die—as Lauren Holder and I do—it's an…
- Testing: Impact and Supports · 31 minIn this episode, we dive deep into the personal and family impacts of genetic testing for Huntington’s disease. Wes, a genetic counselor, joins the conversation to discuss the…
- Life After Testing with Jules · 52 minWhen you're at risk for Huntington's disease, deciding whether or not to undergo genetic testing is one of the most personal and life-changing decisions you may ever face. But…
- Genetic Testing: Time to Test and Process · 16 minIn this episode of Help 4 HD Live, host Katie Jackson sits down with Wes, a certified genetic counselor and director of HD Genetics, to explore the complexities of genetic…
- Katrina and Jamie - Help 4 HD Toolkit Part 2 · 10 minTo read/Print the safety planning chapter of the Help 4 HD Toolkit, click here: Help4HD Database
- Katrina & Jamie talk about the Help 4 HD - HD Tool Kit - PT 1 · 16 minPlease visit the Help 4 HD database to see/print the HD Tool Kit end-of-life chapter here: Help4HD Database
- "My Life, My Science" Part 1 with Dr. Nancy and Dr. Alice Wexler · 20 minNancy and Alice are sisters, authors, scholars, and longtime members of the Huntington’s disease community. Their mother, Leonore Wexler, was diagnosed with Huntington’s disease…
- Traveling Tips & Tricks · 16 minSocial Worker Spotlight with Jamie Holloway Traveling Tips & Tricks Host: Katrina Hamel #HuntingtonsDisease #HD #SocialWorkerSpotlight #Help4HD #Help4HDLive #Travel
- HD Reach Crafting Corner · 22 minPlease visit hdreach.org to sign up for the first Crafting Corner meeting on August 19th at 7 pm
- Patient Clinic Survey Update with HD-PACE · 17 minHow are Huntington's disease clinics doing when it comes to the patient experience? On this episode of Help 4 HD Live, I'm joined by Sarina Smith of HD-PACE to share an update…
- Response to Roche Update with HDBuzz · 17 minToday, Roche announced they will be ending two of their programs for #HuntingtonsDisease. Dr. Rachel Harding of HDBuzz will be joining Lauren to talk about this and what it means…
- On the Other Side of Approval with Jeremy Renz · 50 minFor years, we've talked about clinical trials, FDA meetings, setbacks, and progress. Today, we're talking about something many of us have dreamed about for a long time: What…
- All About Advocacy, Everywhere - USA · 25 minIn this episode, hear Christina DeGryse and Karl Miran speak at the Public Hearing of Commissioner’s National Priority Voucher (CNPV) Pilot Program. Right now, you can leave a…
- All About Advocacy, Everywhere! · 1 h 2 minFor the next few weeks, we are going to talk about advocacy efforts going on everywhere. This week, we have HDYou Community Stories from HDYO. Dina and Sarina share what advocacy…
- Movement Symptoms in Huntington's with Cheryl Turner · 20 minCheryl Turner joins Lauren to talk about movement symptoms in Huntington's Disease and what has been helpful in managing them in her husband.
- Mood Symptoms in HD with Dr. Karen Anderson · 24 minKaren Anderson, MD, is a psychiatrist specializing in neuropsychiatry, and director of the Huntington’s Disease Care, Education and Research Center at MedStar Georgetown…
- HD Awareness Month Help 4 HD Style with Katrina and Katie · 8 minTo Submit an awareness video: Registration Form | Help 4 HD Internatio To request a Help 4 HD HD Awareness Swag box: Registration Form | Help 4 HD Internatio
- "I Am The Swamp" with Rachel Reising · 59 minAfter being publicly dismissed as “the swamp,” by a government official, Rachel Reising is turning that moment into something bigger -using her voice to advocate, to challenge…
- Steps of Courage: Facing Chorea Head-On · 31 minKatie Jackson and Jamie Holloway fill in for Lauren to discuss how chorea (movement) affects people with Huntington's Disease.
- HD Uncut with Sarina Smith · 48 minSarina Smith joined Lauren to talk about her recent trip to Washington D.C. for Rare Disease Week and what she learned from other rare disease groups.
- Love in HD with Heather & Nathan Wilmoth · 57 minEvery year around Valentine's Day, we do a "Love in HD" show. This year, Heather and Nathan Wilmoth joined me to share their love story and how that love fuels not only their…
- Genetic Frontiers with Susanna Smith · 23 minFor more information about Susanna's podcast and health/wellness coaching, please visit her website here. Susanna Smith, MPH, is a health & wellness coach, who trained through…
- HD Uncut with Jeremy R. · 22 minJeremy Renz joined Lauren to talk about the petition to the FDA that he and other advocates created and why it's important we support it. Our Call to Action: Both petitions will…
- Help 4 HD Happenings in 2026 · 27 minKatrina Hamel joins Lauren to talk about what Help 4 HD has planned for 2026. Take a listen! You can also register to attend the events mentioned at the website: www.help4hd.org
- November Update with Katie Jackson · 42 minPlease reach out to Lauren or Katie if you want contact information for the FDA.
- JHD Uncut, Halloween Edition · 17 minHappy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.
- A Glimmer of Light in the Shadows with Jennifer Goddard · 45 minIf you would like to purchase Jen's book, you can do so here.
- HD Uncut wiith Erin Paterson · 29 minAuthor Erin Paterson joined Lauren Holder to talk about their mixed feelings regarding UniQure's recent update.
- UniQure Update with Dr. Ed Wild · 38 minDr. Ed Wild joins Lauren Holder to talk about the recent update from UniQure.
- Sunday Sit-down with Terina Martinez · 51 minIf you'd like to learn more about C-Path, please visit their website here.
- Important Update with HD-PACE · 16 minWe want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for…
- HDCONNECT with Jenna Heilman · 30 minJenna Heilman from HDYO joins me to talk about the HDCONNECT event that will be happening alongside the Help 4 HD Symposium in FT. Lauderdale, FL, in September. We also discuss…
- Attending Events with H, Erika and Melissa · 1 h 32 minH. Patton, Erika and Melissa Boulavsky and I attended the HDYO Congress event in Prague together earlier this year. It was H's first HD event, and he decided to record his…
- PPEM Roundtable with Jamie Holloway · 51 minLauren and Jamie talk about the upcoming roundtable discussion happening at the Help 4 HD Symposium in September 2025.
- The Power of a Moment · 20 minI share how moments with people in the HD community have had an impact on me and refilled my "cup" when I've needed it most.
- MEND-HD with Dr. Lori Quinn and Dr. Jamie Adams · 10 minDr. Lori Quinn and Dr. Jamie Adams share about a new observational study for the HD community, one that you can do from the comfort of your own home! It's called MEND-HD, and you…
- Prime Day in HD · 27 minHere's the link for a list I made with Amazon Prime Day deals that you may find helpful: https://tinyurl.com/primedayinhd
- Liv's Legacy with Esme & Gemma · 55 minToday, we’re honoring the life and legacy of Liv, a beloved HDYO Ambassador. Esme & Gemma join me to talk about mental health, advocacy, and the importance of continuing Liv’s…
- Ingrezza with Dwight Tapp of Neurocrine · 28 minIn this episode, Dwight Tapp, MS, PhD, MBA, CCRP, CRCP, FACHE, sits down with Lauren Holder to discuss the INGREZZA® expansion into the treatment of chorea associated with…
- This is Me Smiling with Sarah & Randy Foster · 1 h 11 minTo buy Sarah's new book, "This is Me Smiling", please click here. To find out more about Sarah and to follow her blog, please click here.
- Being United with Gracey · 40 minGracey shares how HD has become a part of her life since she met her boyfriend, Jake, and how she supports him, making them a united front against HD.
- Spared with Lori Jones · 31 minLori Jones is the author of Spared: A Memoir of Risk and Resolve. In it, she delves into her personal journey growing up in a family affected by Huntington’s Disease (HD)…
- HDYO Congress 2025 - Keynote: Empowerment Through Gratitude · 1 h 18 minJimmy Pollard closes HDYO's 2025 International Young Adult Congress with a speech on Empowerment Through Gratitude. You can watch the full video here.
- HD Uncut with Lance K. · 35 minLance joins me for our HD Uncut series to share his story and how being proactive about his mental health has made such a difference.
