Living with Long covid
by Julie
Latest episode
Karen,Emma and Oonagh talk about their campaign group #ThereForME
Karen,Emma and Oonagh talk about their campaign group #ThereForME
About this podcast
This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.
Episodes
The newest 20 of 107 episodes
- Karen,Emma and Oonagh talk about their campaign group #ThereForME · 41 min · Season 1 Episode 104Send us Fan Mail On this episode of the podcast I am fortunate to be joined by Karen, Emma and Oonagh to discuss their campaign group #ThereForME. They came together to form…
- Special episode; Kerry Davies joins me for a chat on International long covid awareness day · 39 minSend us Fan Mail The 15th March 2025 marks International long covid awareness day, this year is also the five year milestone of the pandemic. For many it will also be reaching…
- Patrick Ussher book release; Understanding ME/CFS & strategies for healing · 40 min · Season 1 Episode 104Send us Fan Mail I am so pleased to be back recording the podcast, thank you for your continued support. I am pleased to have returning guest Patrick Ussher join me on this…
- Episode 2 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, the principles of pacing and understanding energy use, PEM/PESE and the lactate threshold · 42 min · Season 1 Episode 103Send us Fan Mail In this episode of the podcast, Robin McNelis joins me again for part 2 of a series where we aim to cover a variety of topics which will support…
- Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science · 42 min · Season 1 Episode 102Send us Fan Mail In this episode I have returning guests; Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in…
- Patrick Ussher and Peter Deen; Streasure4Health and metabolic stress · 40 min · Season 1 Episode 101Send us Fan Mail In this episode of the podcast I have guests Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in…
- Episode 1 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, understanding pacing micro pacing and why it is Important · 41 minSend us Fan Mail This is part 1 of a series with Robin McNelis, Clinical Specialist Cardiorespiratory physiotherapist. In this episode we discuss pacing and micro pacing, how it…
- Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more · 40 minSend us Fan Mail This is part 3 of the short series of podcasts with the wonderful Rachel Jessey from Benourished. Rachel has so much knowledge and experience which is why we…
- Part 2 with returning guest Rachel Jessey - faecal implant, vitamins and the gut microbiome · 41 min · Season 1 Episode 98Send us Fan Mail Following on from the last episode of the podcast, as promised this is part 2 with Rachel Jessey from Benourised. We continue and expand on the short…
- Returning guest Rachel Jessey - lets talk about the gut! · 40 minSend us Fan Mail In this episode of the podcast I talk with a fantastic returning guest Rachel Jessey. We talk about all things gut related and the microbiome, Rachel explains…
- Guests Gary and Karen, discuss their personal journey and setting up a local Long Covid support group · 39 min · Season 1 Episode 96Send us Fan Mail In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple…
- The pandemic, the government and the general election · 39 minSend us Fan Mail In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and…
- Four years later! · 29 min · Season 1 Episode 94Send us Fan Mail In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted…
- Guest; A. K. Davidson - Poetry for life and other chronic conditions · 38 min · Season 1 Episode 93Send us Fan Mail On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which…
- Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS · 38 min · Season 1 Episode 92Send us Fan Mail In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app…
- Alexander Taylor - Creating a safe space · 43 min · Season 1 Episode 91Send us Fan Mail In today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me this concept of "safe space"…
- As requested....My experience on using a fitted Vagus nerve stimulator! · 28 min · Season 1 Episode 90Send us Fan Mail As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve…
- NHS court hearing update with Kevin Digby and Rachel Hext · 40 min · Season 1 Episode 89Send us Fan Mail In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA…
- Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid · 39 min · Season 1 Episode 88Send us Fan Mail In this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Kong polytechnic…
- Q&A with Kevin Digby GA Solicitors · 35 min · Season 1 Episode 87Send us Fan Mail Over the last couple of weeks you may have seen in the news, Dr Fearnley and the group she co-founded Long Covid Doctors for action; If not, these are a group of…
