MPN Pod: Stories from the Marrow
by BloodStream Media
Latest episode
Finding Support While Living With PV or ET: An Oncology Social…
Finding Support While Living With PV or ET: An Oncology Social…
About this podcast
MPN Pod: Stories from the Marrow is a podcast about Myeloproliferative Neoplasms (MPNs) and is intended for patients, caregivers, providers, and the greater community impacted by MPNs. Each episode, MPNPod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community.
Transparency Statement:
MPN Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
Episodes
The newest 20 of 27 episodes
- Finding Support While Living With PV or ET: An Oncology Social Worker's Perspective · 29 min · Season 3 Episode 6In this episode of MPN Pod, Kay and Josh sit down with Rachel Suarez, a licensed clinical social worker who specializes in oncology, to discuss the often overlooked emotional and…
- Everyday Life: Troy's Story of Fatigue, Music, & Resilience · 25 min · Season 3 Episode 5In this episode of MPN Pod: Stories from the Marrow, hosts Josh and Kay speak with entrepreneur and musician Troy Putman about living with essential thrombocythemia, or ET. Troy…
- A Young Mom's Journey with Essential Thrombocythemia (ET) · 28 min · Season 3 Episode 4On this episode of the MPN Pod, hosts Kay and Josh sit down with Raqueal, a 33-year-old mother of two from Arizona, to hear her journey with essential thrombocythemia (ET), from…
- Essential Thrombocythemia 101 · 34 min · Season 3 Episode 3In this episode of The MPN Pod, hosts Kay and Josh sit down with Dr. Tony Hunter, an MPN specialist and associate professor at Emory University, for a comprehensive ET 101. Dr…
- Catching up with Gary Linehan: Living with PV and his Next Big Adventure · 22 min · Season 3 Episode 2On this episode of the MPN Pod, hosts Kay and Josh welcome back fan-favorite guest Gary Linehan, a 56-year-old educator and avid hiker living with polycythemia vera, for an…
- A Young Patient's Journey: Balancing Career and Polycythemia Vera · 25 min · Season 3 Episode 1In this season three premiere of the MPN Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg interview Dr. Tyler Parsons, a postdoctoral researcher at Washington…
- A 2025 Year in Review for Polycythemia Vera · 26 min · Season 2 Episode 8The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients…
- Self-Empowerment & Polycythemia Vera · 28 min · Season 2 Episode 7On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her…
- Managing Your PV and Mental Health · 30 min · Season 2 Episode 6On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health…
- Self Advocacy in Polycythemia Vera: A Patient's Perspective · 25 min · Season 2 Episode 5On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her…
- Shared Decision Making in Polycythemia Vera · 29 min · Season 2 Episode 4On this episode of the PV Pod, Josh and Kay discuss the critical importance of shared decision making in the treatment of polycythemia vera (PV). They are joined by Dr. Lucia…
- Talking to Friends & Family about PV · 34 min · Season 2 Episode 3On this episode of the PV Pod, we dive into the experiences of Steven Ames, who shares his journey with polycythemia vera (PV). Diagnosed during the height of COVID-19, Steven…
- Managing Polycythemia Vera for the Long Term · 19 min · Season 2 Episode 2On this episode of the PV Pod, hosts Josh and Kay engage in a detailed discussion with Dr. Solly Chedid about managing polycythemia vera (PV) over the long term. They explore…
- Dana's PV Journey: Research, Resilience & Mental Health · 22 min · Season 2 Episode 1On the Season 2 premiere of the PV Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg introduce Dana, a therapist diagnosed with polycythemia vera (PV) at 35. Dana…
- Grounded with Purpose: Ken Stein's Journey with PV · 21 min · Season 1 Episode 12On the final episode of Season 1 of The PV Pod, we're in conversation with Ken Stein, a 77-year-old former pilot diagnosed with polycythemia vera (PV). Ken shares his diagnosis…
- A Year in Review for Polycythemia Vera · 21 min · Season 1 Episode 11On this episode, Josh and Kay recap the first year of 'The PV Pod: Stories from the Marrow', reflecting on key moments from their ten episodes. They discuss polycythemia vera…
- Behind the Words: Polycythemia Vera Definitions · 25 min · Season 1 Episode 10On this episode of PV Pod: Stories from the Marrow, we welcome special guest Dr. Brandi Reeves. She helps us dive into an encyclopedic exploration of polycythemia vera (PV). They…
- Gary Linehan's Mont Blanc Adventure - Part 2 · 20 min · Season 1 Episode 9We're back with Gary Linehan, an avid hiker living with polycythemia vera (PV) to talk about his incredible hike around Mont Blanc. Gary shares his journey, the challenges he…
- Journey Beyond Diagnosis: Gary Linehan's Hike and Hope · 23 min · Season 1 Episode 8On this episode, Gary Linehan, an experienced educator and avid hiker, shares his profound journey from being diagnosed with polycythemia vera (PV) in 2021 to embarking on…
- What to Know about Progression in Polycythemia Vera · 24 min · Season 1 Episode 7On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of…
