The One Percent Heart
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Episode terbaru
Mechanical Heart Valve vs. the Grand Canyon | Bob Smith Returns!
Mechanical Heart Valve vs. the Grand Canyon | Bob Smith Returns!
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Welcome to The One Percent Heart Podcast, inspired by the 1% of people born with a congenital heart defect (CHD) and the journey they navigate at every stage of life. Through heartfelt stories and expert interviews, we highlight the experiences of children and adults living with CHD, while exploring the medical breakthroughs shaping their future. Why does this matter? CHDs are often overlooked, yet they affect millions. We’re here to change that — raising awareness, offering support, and building a more connected community for patients, families, and healthcare providers.
Episode
20 episode terbaru dari 23
- Mechanical Heart Valve vs. the Grand Canyon | Bob Smith Returns! · 1 jam 9 mntThree weeks after a helicopter lifted him out of the Grand Canyon, Bob Smith went climbing. Bob is back on The One Percent Heart. Last time he told us about El Capitan. This time…
- Patients in the Room | cardiacneuro.org | The One Percent Heart Podcast · 53 mntA teenager came through a full cardiac workup and the cardiologist saw nothing wrong. Everyone else in the room saw a kid who was depressed. 🗓️ THE CONFERENCE THEY WANT YOU AT…
- More Than Survival | Rick Puder & Brook Dorris, Mentors & Advocates | The One Percent Heart Podcast · 45 mntWhat happens after you survive something? Rick Puder's answer was to walk the next person through it. Brook Dorris's answer was to change the system. Both do it through the Adult…
- Why Research Never Reaches Families | Dr. Dawn Ilardi · 35 mntTen experts from eight institutions spent over a year building a consensus statement on adult congenital heart disease. It was published in the Journal of the American Heart…
- The Heart-Mind Connection | Dr. Dawn Ilardi · 33 mntIf your child was born with a heart condition, there's a connection between their heart and their brain that most families are never told about. Dr. Dawn Ilardi is a pediatric…
- Stronger Hearts: Part 2 - It Takes a Team · 36 mntHow do you build a nonprofit while working 60-hour weeks and raising a baby with HLHS? In Part 2, Connor Hill breaks down exactly what Stronger Hearts Foundation has…
- Stronger Hearts: Part 1 - Building a Foundation from the NICU · 25 mntWhat happens when your child's heart diagnosis becomes the catalyst for helping hundreds of other families? Connor Hill, co-founder of the Stronger Hearts Foundation, joins the…
- The Longest Lived Open Heart Patient: Part 3 - Why It Matters · 35 mntThe ripple effects of one 1952 surgery are still being felt today. In this final part, we explore the awareness gap that leaves thousands of CHD patients without proper care, the…
- The Longest Lived Open Heart Patient: Part 2 - What Came Next · 21 mntWhat happens after you survive a surgery that wasn't supposed to work? Bill Causey didn't just survive - he thrived. Law school, 34 years teaching at Georgetown, marriage…
- Longest Lived Open Heart Patient: Part 1 - The Surgery That Changed Everything · 25 mntIn 1952, a three-year-old blue baby was given weeks to live. On Dr. Alfred Blalock's 54th birthday, he and his team performed a groundbreaking surgery that would change cardiac…
- Episode 11: Women's Health & CHD · 54 mnt · Musim 2 Episode 2Be advised: This episode discusses medical trauma including loss of autonomy and denial of care. Listener discretion is advised. Episode 11: Women's Health & CHD A candid look…
- Episode 10: EmpowerMyCH - The App Built for Us · 50 mnt · Musim 2 Episode 1The app putting CHD patients in control - and the remarkable story behind it. Meet the team behind EmpowerMyCH, a groundbreaking app created specifically for CHD patients. Dr…
- Episode 9: Close to the Chest · 47 mnt · Musim 1 Episode 9Transforming Personal Trauma into Powerful Advocacy In this episode of the One Percent Heart, I'm joined by Brook Dorris, a patient advocate, special education teacher, and…
- Bonus: Peer Support Program · 44 mntHow Peer Mentors Change the Game for CHD Patients and Families In this special episode ofThe 1% Heart, we highlight the power of peer mentorship and the incredible impact of…
- Episode 8: Waiting for a Heart · 41 mnt · Musim 1 Episode 8Heart Failure and the Transplant Process In this episode of The 1% Heart podcast, we hear from Bailey Vincent, a congenital heart patient currently undergoing evaluation for…
- Episode 7: The Mountains We Climb · 44 mnt · Musim 1 Episode 7Navigating the relationship between CHDs and exercise In this episode, we get to hear from a rock climber with a mechanical valve. Bob Smith, an English teacher from Colorado…
- Episode 6: Not Alone Anymore · 49 mnt · Musim 1 Episode 6The Peer Mentor Program and having someone who gets it In this special episode of The 1% Heart, we learn about peer support in the CHD community and the Adult Congenital Heart…
- Episode 5: Our Shared Trauma · 38 mnt · Musim 1 Episode 5How CHD medical trauma can influence mental health In the fifth episode of The 1% Heart, I get the opportunity to learn from Meghan Stewart of Hands to Heart Therapy. Meghan is…
- Episode 4: An International Comparison · 31 mnt · Musim 1 Episode 4A crossover episode with Stewart Liang of Heart2Hearts Podcast In this special crossover episode of The 1% Heart, I am joined by Stewart Liang, the UK-based advocate and creator…
- Episode 3: How They See Us · 26 mnt · Musim 1 Episode 3How raw advocacy is changing how patients are viewed by society In the third episode of The 1% Heart, I'm joined by Bethany and Hannah Keime, the founders of HeartCharged and…
