The POTScast
av Standing Up to POTS, Inc.
Live recordings from 13th annual 5k/2k fundraising event for POTS…
Om den här podden
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness.
Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.
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- Live recordings from 13th annual 5k/2k fundraising event for POTS research · 42 minThis episode of the POTScast was recorded before our in-person 5K/2K event to raise funds for POTS research grants. POTS patients and their loved ones spoke with us to give an…
- Dr. Tania Dempsey answers more listener questions in Mast Cell Matters · 49 min · Säsong 4Dr. Dempsey, one of the world's leading experts on MCAS and associated conditions, answers listener questions about exercise as a mast cell trigger, the underlying causes of…
- Jessica’s medical-legal battle since her COVID shot · 57 min · Säsong 4 Avsnitt 278Jessica was a kindergarten teacher with three advanced degrees, two young children, a husband, and busy life before COVID, despite having POTS, which she managed with salt…
- POTS triggered by physical trauma associated with greater symptom severity with Dr. Cathy Pederson · 43 minIn this episode Dr. Cathy Pederson shares her latest published findings from a POTS patient survey looking at the relationship between POTS triggers -- such as infection…
- Madeline on creating the POTSie app to help manage POTS · 27 minIn this episode, Madeline shares her experience of living with POTS, from diagnosis to the daily routines that helped her improve over time. She talks about how exhausting it can…
- Robert Groysman, MD on identifying mechanisms driving long COVID with the Trigger-Timing Framework · 54 minAfter successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series…
- Dr. David Kaufman & Paddy Monahan on Vindara Health for Complex Patients · 50 minVindara Health is the new telehealth specialty clinic created by Dr. David Kaufman and Paddy Monahan, to improve access to expert care for patients with the most complex…
- Campaign against synthetic fragrances with Attorney Scott Cole and Dr. Tania Dempsey · 53 minIn this episode, we explore the legal and civil rights issues surrounding chemical and fragrance intolerance, including what happens when people are unable to safely access…
- Michelle co-founded CANrise19 to help Canada’s COVID vaccine injured · 36 minMichelle was a busy mom, business owner and back country adventurer whose life changed dramatically in the 36 hours following her second COVID shot. After finding little help…
- Four Insights for Providers with Dr. Kirti Sivakoti, MD · 49 minPediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and…
- When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook · 45 minFor patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike…
- Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series · 33 minIn this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on…
- Emily on her daughter’s 20-year medical Odyssey, faith, EWOT and more · 40 minEmily's daughter had sensitivities since a very young age. Emily recounts their journey with mysterious symptoms, good and bad medical encounters, conventional and unconventional…
- Founder Austin Walker on Building the AI Layer for Chronic Illness · 37 minAustin Walker sold his last company in 2020, then got COVID and never recovered. He spent 9 months bedridden, saw 20+ doctors who all dismissed it as stress. He eventually got…
- Connecting the Dots in Long COVID with Dr. Robert Groysman · 1 h 7 minAfter successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series…
- Tiffany Hoke DNP, Complex neurovascular patient turned expert helping others · 1 h 8 minTiffany, a Doctor of Nursing Practice (with 6 other nursing/neurological credentials), relates her epic journey to uncover her own - and her family history of - neurovascular…
- Endometriosis with Dr. Tania Dempsey as part of the Mast Cell Matters series · 50 minIs endometriosis related to mast cells, MCAS and POTS in some people? Dr. Dempsey explains why she suspects a link, how fertility, insulin resistance and pelvic congestion…
- Debra Hawkins, DNP, dysautonomia specialist with ER experience · 43 minDr. Debra Hawkins, DNP, is an advanced practice nurse and cardiology provider at Cardiovascular Health Clinics in Oklahoma specializing in POTS and autonomic dysfunction. She…
- Nicole, The Autonomic Coach and news reporter from Hawaii · 41 minNicole is a live morning news reporter (on her feet from 1am to 9am!) and horse lover in Hawaii who has dealt with type 1 diabetes, cyclic vomiting syndrome, POTS and more. In…
- Dr. Kamal Chemali on Music and Medicine · 38 minDr. Kamal Chemali is an autonomic neurologist, Professor of Medicine and Director of the Autonomic Nervous system Program at Case Western Reserve University. He started studying…







