EAHAD
tekijä: EAHAD - European Association for Haemophilia and Allied Disorders
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Breaking Barriers: Pioneering Psychosocial Support for Bleeding…
Breaking Barriers: Pioneering Psychosocial Support for Bleeding…
Tietoa podcastista
Welcome to the official podcast of the European Association for Haemophilia and Allied Disorders (EAHAD). EAHAD is a multidisciplinary organization committed to improving the lives of people living with bleeding disorders in Europe. Our podcast is dedicated to providing valuable insights, discussions and updates on the latest developments in the field of haemophilia and allied disorders. Join us as we explore a wide range of topics including treatment, research, and patient care.
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- Breaking Barriers: Pioneering Psychosocial Support for Bleeding Disorders in Kyrgyzstan · 5 minWhen we talk about bleeding disorders, care often begins with diagnosis, treatment, and the prevention of bleeding. But living with a bleeding disorder involves much more than…
- 100 Years of Von Willebrand Disease: Looking Back, Thinking Forward · 18 min · Kausi 1 Jakso 1In this episode of EAHAD Insights, Riitta Lassila and Alberto Tosetto, Von Willebrand Disease experts, look back at 100 years of progress in VWD and discuss how historical…
- Meet the Author Ep. 12: Haemophilia infants gross motor development: comparisons with full-term and preterm infants of the same nationality · 17 min · Kausi 2 Jakso 4Haemophilia infants’ gross motor development: are we supporting movement from the very beginning? How does haemophilia affect gross motor development during the first months of…
- Meet the Author Ep. 11: Predicting Recovery After Joint Bleeding in Persons With Bleeding Disorders · 15 min · Kausi 2 Jakso 3Based on the recent study Predicting Recovery After Joint Bleeding in Persons With Bleeding Disorders, we discuss the factors that influence recovery time, the importance of…
- Revisiting the role of FVIII in Haemophilia A in 2026 · 25 min · Kausi 1 Jakso 3In this episode, Cedric Hermans sits down with Jan Blatný, Consultant Haematologist at Masaryk University and University Hospital Brno, EHCC and EuroBloodNet Centre, and former…
- Meet the Author Ep. 10: The effects of traumatic pain memories on current pain experience in men with haemophilia · 16 min · Kausi 2 Jakso 2Pain is not always just physical; sometimes, it’s shaped by memory. In this episode, Merel Timmer explores a recent study by Anna Wells, Clinical Specialist Physiotherapist in…
- E-Learning Ep. 14: Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies · 13 min · Kausi 3 Jakso 1Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding its…
- Meet the Author Ep. 9: The Developing Role of Occupational Therapy within Haemophilia Services · 17 min · Kausi 2 Jakso 9In this episode, Paul McLaughlin talks to Claire Forde, a specialist Occupational Therapist working in bleeding disorders. Listen to them discuss Claire's unique job role and how…
- Meet the Author Ep. 8: A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children · 32 minIn this episode, Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee and Paediatric Nurse in Thrombosis and Haemostasis, discusses how the Neria™ Guard infusion set may…
- Meet the Author Ep.7: Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study · 17 min · Kausi 2 Jakso 2In this episode of "Meet the Author", Daniel C. Ogrezeanu discusses his recent paper on "Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults…
- Meet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study · 24 min · Kausi 2 Jakso 1This episode features Paul Mclaughlin and Paula Loughnane interviewing him about his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people…
- Meet the Author Ep. 5: A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia · 12 min · Kausi 1 Jakso 5This episode features Johan Blokzijl and Paula Loughnane interviewing him about his recent paper "A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with…
- E-Learning Ep. 13: Surgery in patients with haemophilia with inhibitors · 25 min · Kausi 1 Jakso 13Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research…
- E-Learning Ep. 12: Surgery in patients with haemophilia · 16 min · Kausi 1 Jakso 12Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research…
- Meet the Author Ep. 4: ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia · 23 min · Kausi 1 Jakso 4This episode features Sébastien Lobet who is currently a Physiotherapist and Researcher at the Haemostasis and Thrombosis Unit at the Cliniques Universitaires Saint-Luc at…
- E-Learning Ep. 11: How can we improve the efficacy and safety of gene therapy? · 21 min · Kausi 2 Jakso 11Welcome to our podcast series, today we interview Prof. Thierry VandenDriessche to discuss how to enhance the efficacy and safety of gene therapy for haemophilia A and B. Despite…
- E-Learning Ep. 10: Clinical Experience in Haemophilia Gene Therapy · 21 min · Kausi 2 Jakso 10Dive deep into understanding the Clinical Experience in Haemophilia Gene Therapy with Johnny Mahlangu. 🎥 Watch the full module on the EAHAD Academy…
- E-Learning Ep. 9: Basic Science of Haemophilia Gene Therapy · 21 min · Kausi 2 Jakso 9This new episode on the Basic Science of Haemophilia Gene Therapy with Paul Batty introduces the science underlying this new therapy. Itprovides an overview of different gene…
- E-Learning Ep. 8: Peripartum management of women with von Willebrand Disease · 24 min · Kausi 2 Jakso 8In this episode, we explore the complexities of managing Von Willebrand Disease in women during childbirth. This in-depth discussion goes beyond the basics, addressing the unique…
- Meet the Author Ep. 3: Physical activity, physical fitness and cardiometabolic risk amongst adults with moderate and severe haemophilia · 9 min · Kausi 1 Jakso 3This episode features Megan Kennedy talking with Paula Loughnane, a member of the EAHAD Physiotherapists Committee, about her recent research on the physical well-being of adults…
